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If the history of the last century taught us the dangers of empowering governments to determine genetic “fitness” (i.e., which person fits within the triangle, and who lives outside it), then the question that confronts our current era is what happens when this power devolves to the individual. It is a question that requires us to balance the desires of the individual— to carve out a life of happiness and achievement, without undue suffering— with the desires of a society that, in the short term, may be interested only in driving down the burden of disease and the expense of disability. And operating silently in the background is a third set of actors: our genes themselves, which reproduce and create new variants oblivious of our desires and compulsions— but, either directly or indirectly, acutely or obliquely, influence our desires and compulsions. Speaking at the Sorbonne in 1975, the cultural historian Michel Foucault once proposed that “a technology of abnormal individuals appears precisely when a regular network of knowledge and power has been established.” Foucault was thinking about a “regular network” of humans. But it could just as easily be a network of genes.
Siddhartha Mukherjee
Cosmopolitanism seeks a _we_ that does not rely on the exclusion of _others_ but, instead, recognizes and confirms each other as part of the planetary _we_. The cosmopolitan _we_ is not grounded in a monolithic sameness but in a constant alterity and _ethical singularity_ of each individual human person regardless of one's national origin and belonging, religious affiliation, gender, race and ethnicity, class ability, or sexuality.
Namsoon Kang
Most USA citizens never realize that the systems of public protection are essentially useless until they try to use them. At that point they learn the hard way that government agencies like OSHA, FCC, FDA, police internal affairs, disability, and the like do not work for them.
Steven Magee
It was probably no accident that it was the cripple Hephaestus who made ingenious machines; a normal man didn't have to hoist or jack himself over hindrances by means of cranks, chains and metal parts. Then it was in the line of human advance that Einhorn could do so much.
Saul Bellow
For a long time I spent my weary days in a fog of what might be and what has been and I guess you could say im still learning how to accept what is.
Nikki Rowe
What's it like here?There's a biscuit factory next door. We get the broken ones.
Hiedi Thomas Jennifer Worth
Everything is temporary, almost like a passing fase, some of laughter Some of pain. What we would do, If we had the chance to explore What we had taken for Granted the very day before, Some would say I'm selfish, To hold a little sadness in my eyes, But they don't feel the sorrow When I can't do, all that helps me feel alive. I can express my emotions, but I can't run wild and free, My mind and soul would handle it but hell upon my hip, ankle and knees, This disorder came about,as a friendship said its last goodbyes, Soooo this is what I got given for all the years I stood by? I finally stand still to question it, life it is in fact? What the fuck is the purpose of it all if you get stabbed in the back? And after the anger fills the air, the regret takes it places, I never wanted to be that girl, Horrid, sad and faded... So I took with a grain of salt, my new found reality, I am not of my pain,the disability doesnt define me. I find away to adjust, also with the absence of my friend,I trust the choices I make, allow my heart to mend. I pick up the piecesI retrain my leg, I find where I left off And I start all over again, You see what happens... When a warrior gets tested; They grow from the ashes Powerful and invested. So I thank all this heartache,As I put it to a rest, I move forward with my life And I'll build a damn good nest.
Nikki Rowe
So to all who are situated as I am, I would say--Grow up as fast as you can.
Randolph Bourne
Beware trying to iron out all your quirks, perceived flaws and doubts. It's often these things that help you find strength, compassion, empathy for others and heart.
Rasheed Ogunlaru
Next to God, Family is the best thing.
April Floyd
..a disability is something within you. A prejudice is something within theemployer...don’t look at yourself through their eyes. Look at yourself through your own eyes.
Richard N. Bolles
I've been so focused on state government, I haven't really focused much on the war in Iraq.
Sarah Palin
I look out onto this world I'm in and hope that one day all people will be accepted and valued as they are.
TinaJ. Richardson
Life is all about balance. Since I have only one leg, I understand that well.
Sandy Fussell
Suffering is so real & I walk amongst so many who have no idea how much my soul is aching to be healed.
Nikki Rowe
There are two kinds of 'disabled' persons: Those who dwell on what they have lost and those who concentrate on what they have left.
Thomas Szasz
In the context of the autism world (and my outlook in general) this is were I stand equality is for everyone, everybody in the world - I look at both sides of the the coin and take into account peoples realities (that makes me neutral/moderate/in the middle). That means that you look in a more three dimensional perspective of peoples diverse realities you cannot speak for all but one can learn from EACH OTHER through listening and experiencing. I also try my best to live with the good cards I was given not over-investing in my autism being the defining factor of my being (but having a healthy acknowledgement of it) that it's there but also thinking about other qualities I have such as being a writer, poet and artist.I do have disability, I do have autism and I have a "mild" learning disability that is true but I a human being first and foremost. And for someone to be seen as person equal to everyone else is a basic human right.
Paul Isaacs
An aged monk led me to the infirmary. "He's got the place to himself. Once the other invalids learned there was a dragon coming they miraculously got well! The lame could walk and the blind decided they didn't really need to see. He's a panacea.
Rachel Hartman
I guess it's human nature to question yourself, to question why all the pain has had to happen? sometimes there isn't any answers it just is what it is and how we make ourselves feel and see through that, is what will determine how we move forward.
Nikki Rowe
Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.
Charisse Montgomery
God's time is slow, patient, and kind and welcomes friendship; it is a way of being in the fullness of time that is not determined by productivity, success, or linear movements toward personal goals. It is a way of love, a way of the heart.
John Swinton
The worst disability in life is a bad attitude.
SupaNova Slom
Discrimination is the most polite word for abuse aka denying equal opportunity by anyone in power based on age, ancestry, color, disability (mental and physical), exercising the right to family care and medical leave, gender, gender expression, gender identity, genetic information, marital status, medical condition, military or veteran status, national origin, political affiliation, race, religious creed, sex (includes pregnancy, childbirth, breastfeeding and related medical conditions), and sexual orientation.
Ramesh Lohia
Healing severe or chronic pain, I believe, includes transforming our relationship to the pain, and, ultimately, it is about transforming our relationship to who we are and to life.
Sarah Anne Shockley
Choosing to accept yourself is a political act. An act of liberation.
Francesca Martínez
Compassion, acceptance and LOVE is the cure to MOST of the issues that plague this world.
Yvonne Pierre
Boredom is probably more frequent and more tormenting if you do not have sight or hands.
Mokokoma Mokhonoana
The most upsetting thing about Society’s attitude towards disabled people is that many millions of disabled people became disabled while trying to please Society, the very same bitch that secretly regards them as subhuman.
Mokokoma Mokhonoana
The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.
Charisse Montgomery
The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.
Jennifer Starzec
A troubled life beats having no life at all
Richard M. Cohen
I saw a documentary about prostitution in Holland a few years ago, that said over there health insurance actually pays for monthly visits to a prostitute for the disabled, because they feel that sex is part of a healthy life, so unmarried disabled men have a right to have sex, even if it's with a paid prostitute. Pretty bizarre, huh? Can you imagine a US health insurance company picking up the bill for your romp in the hay with a hooker?
Oliver Markus Malloy
In fact, his travelogues spend amazingly little time discussing his blindness. Only one passage stands out for its frank discussion of his handicap and how it changed his worldview. In it, Holman was reminiscing about a few rendezvous from his past. Disarmingly, he admitted that he had no idea what his paramours looked like, or even whether they were homely. Moreover, he didn't care: by abandoning the standards of the sighted world, he argues, he could tap into a more divine and more authentic beauty. Hearing a woman's voice and feeling her caresses -- and then filling in what was missing with his own fancy -- gave him more pleasure than the mere sight of a women ever had, he said, a pleasure beyond reality. "Are there any who imagine," Holman asked, "that my loss of eyesight must necessarily deny me the enjoyment of such contemplation? How much more do I pity the mental darkness which could give rise to such an error.
Sam Kean
Finally, especially in the case of medical-response canines and those that serve handlers with invisible disabilities, it's not merely the necessity of the dog that's questioned but also the existance of the disability itself. And for these partnerships, some of the greatest problems arise.
Susannah Charleson
The thought of being able to [move my arms] made me want to give up my legs [instead] since I was accustomed to using them. But, I figured that after a few hours of sitting in a wheelchair...I would switch back...in a flash.
Sarah Todd Hammer
...Goddamn himself for letting his independence slip away from him. He didn't even know how it had happened, how he had lost the ability to function on his own, or what the hell he was going to do about it now.
Kimberly Gardner
I could feel the bite of the autumn air, warning us all of the harsh winter that was on its way.
Jennifer Starzec
I look down, worried something is showing after all, but if it wasn't for the incongruous absence of sensation on my left side, I wouldn't know. I look back up at her, taking a step closer because I kind of want to take a step back, and you can’t let that show. "What?"She tenses, even though I’m not even remotely close enough to, say, hit her. "I... I thought you were white."I snort, too relieved to take offense. "I'm adopted. Not my biggest problem at the moment."She smiles at me, looking a little relieved herself. "It just... it seemed a bit too... British, I guess." And it's then that I notice the slight twinge of her accent.“I am British. I was born here.” Her own skin is a light chocolate brown, light enough that it’s perfectly visible when she blushes. She looks so adorable that I almost resist, but not quite. “You have anything against Britishness?” I ask, coming to lean against the doorway on my good side, relieving the weight I have to put on the leg.“No!” she assures me. “No, it’s…” Her hands flutter nervously in front of her, like she hopes to pluck the words out of the air. “I just worry. Some people are weird about it. About me. Especially with the tutoring.
Aska J. Naiman
People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.
Jennifer Starzec
Stage fright is very common and could be overcomed through step by step processes, but stuttering is a fright that takes time to conquer.
Michael Bassey Johnson
Severe mental illness has been likened to drug addiction, prostitution, and criminality (37,38). Unlike physical disabilities, persons with mental illness are perceived by the public to be in control of their disabilities and responsible for causing them (34,36). Furthermore, research respondents are less likely to pity persons with mental illness, instead reacting to psychiatric disability with anger and believing that help is not deserved (35,36,39).Understanding the impact of stigma on people with mental illness. World Psychiatry. Feb 2002; 1(1): 16–20.PMCID: PMC1489832PATRICK W. CORRIGAN and AMY C. WATSON
Matthew W. Corrigan
God is so cruel," she murmured reflectively, as though answering him."Yes," he admitted, from the vantage point of going blind. "Though maybe people are kinder if He made them that way.""You've run with a different crowd. Rich people are nicer to rich people.""Sure. Yes. That's why I've washed up here. Rich people couldn't have been nicer to me.
Edward Hoagland
The hyping of disabled athletes into superhuman status by Channel 4 only deepens our wounds, inflicted by continual assaults on our daily lives. It truly seems that the only acceptable disabled person is a Paralympian – and then only for a few weeks.
Penny Pepper
When you focus on someone's disability you'll overlook their abilities, beauty and uniqueness. Once you learn to accept and love them for who they are, you subconsciously learn to love yourself unconditionally.
Yvonne Pierre
I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.
Sarah Todd Hammer
In retrospect, it seems obvious that my research about parenting was also a means to subdue my anxieties about becoming a parent.... I grew up afraid of illness and disability, inclined to avert my gaze from anyone who was too different – despite all the ways I knew myself to be different. This book helped me kill that bigoted impulse, which I had always known to be ugly. The obvious melancholy in the stories I heard should, perhaps, have made me shy away from paternity, but it had the opposite effect.
Andrew Solomon
An exhausted parent can’t provide the best care, although occasionally, we have all had to do so.
Charisse Montgomery
The lingerie department is the only one that she can reach in her wheelchair. Nevertheless, she is fired the next day because of complaints that a woman who is so obviously not sexually attractive selling alluring nightgowns makes customers uncomfortable. Daunted by her dismissal, she seeks consolation in the arms of the young manager and soon finds herself pregnant. Upon learningof this news, he leaves her for anondisabled woman with a fullerbustline and better homemaking skills in his inaccessible kitchen.
Rosemarie Garland-Thomson
Strange how knowing our story had no happy ending had freed us to live in the moment. We weren’t guy and girl. We weren’t damaged and terminal. We were just now.
Elizabeth Langston
When God does not answer His children according to the letter, He does so according to the spirit. If thou askest for coarse meal, wilt thou be angered because He gives thee the finest flour? If thou seekest bodily health, shouldst thou complain if instead thereof He makes thy sickness turn to the healing of spiritual maladies?
Charles Haddon Spurgeon
I thought having a chronic illness would make my life detour in ways I didn't want to accept, but I've learnt that have a chronic illness made the only detours that are worth the growth.
Nikki Rowe
I need to do something about college, but I’m not sure what.”“Where have you decided to apply?”“Nowhere yet. Any time I think about the schools I’ve visited, I feel overwhelmed. The campuses are so big that I know I’ll get lost. I dread making new friends. And the professors acted too busy to deal with someone like me. My parents will be wasting a huge amount of money.”“Your fears are no different than most high school seniors.” He studied me thoughtfully. “Must you go to college?”I opened my mouth to say Of course, I must—and then shut it again. The concept didn’t bother me nearly as much as it should have. Skipping college would be crazy. Right? It was hard enough for a disabled person to find a job, but being disabled with no degree would make it hopeless. “I don’t have a choice.”“Perhaps you have more choices than you realize.
Elizabeth Langston
Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI
Sarah Todd Hammer
In America access is always about architecture and never about human beings. Among Israelis and Palestinians, access was rarely about anything but people. While in the U.S. a wheelchair stands out as an explicitly separate experience from the mainstream, in the Israel and Arab worlds it is just another thing that can go wrong in a place where things go wrong all the time.
John Hockenberry
If he could not go out into the world, the world could come to him.
Doris Kearns Goodwin
You really don't have to subscribe to the life that had been written for you.
Allan Hennessy
Some disabled people spend a significant amount of their energy on trying to come across as abled or as not that disabled.
Mokokoma Mokhonoana
At the cross, Jesus subjects himself to disability, and his resurrected body continues to bear his scars as a sign of God's solidarity with humanity.
Thomas E. Reynolds
You're not allowed to have legs and not use them.Dance.
Dianna Hardy
A bind is when you're quadriplegic, suicidal about that and unable to persuade your best friend to murder you.
Brian Spellman
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